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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Newbie to here, but not this condition. Please clarify:

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Coping › Newbie to here, but not this condition. Please clarify: › Reply To: Newbie to here, but not this condition. Please clarify:

December 29, 2012 at 3:45 am #3267
Shom41
Participant

I took Z&Z last night (just 10mg and 150mg) and cromolyn sodium 4x per day. My diet has a big impact on my sensitivities as well. I met with my Md yesterday and joked that I was climbing Mt. Kilimanjaro next week and that I needed Diamox. He’s very open-minded, and gave me an Rx for a year. I took 250mg at 3pm, and another 250mg at 1030. I woke up now, at 230am , after I was coughing with some pretty interesting sputum from my lungs. Actually, my sputum almost tasted like bile aspiration which was pretty painful.

However,. I stayed up because I feel like I could go run a marathon. Seriously, after two pills of Diamox, I am noticing something major… I do have the effect of flat-tasting soda…which I thought was funny.

Your note about breathing really stood out to me.. My wife will often hear me take a deep breath, and release.. And then, she will remind me to breathe again. She has always felt something has been wrong with my lungs… I had done a lot of research on alkalosis and acidosis but could never really figure it out,, Doctors say I have obstructed breathing… I take in more oxygen than I release… It’s like my diaphragm isn’t strong enough to push out the intake, I don’t know..

I just still can’t believe how I feel on this diamox.. Hope it lasts..

Thanks for replying,
Tom

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