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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: MRI pictures of my head, Chiari and hydrocephalus?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › MRI pictures of my head, Chiari and hydrocephalus? › Reply To: MRI pictures of my head, Chiari and hydrocephalus?

February 15, 2013 at 5:20 pm #3462
Dr. Diana
Keymaster

Hi Samuel, I echo the other comments here as well. It is AMAZING to see the difference from one slice to the next, so a few slices helps a lot. AMEN to the vertical MRI! It can make a fairly big difference if you have laxity. There was a push for quite a while to do surgery on the folks who didn’t appear to have the ‘typical Chiari’, but who had symptoms of Chiari. They invented the name ‘Chiari Zero’, and I think that pushed some people to have surgery when perhaps Diamox would have corrected it (by lowering the intracranial pressure). That is what happened to my kids and I. I was ready to have cervical fusion (I couldn’t turn my head without feeling like I was passing out), a brain shunt (I had symptoms of hydrocephalus), and Chiari surgery (I had all of the Chiari symptoms and was disabled, as was my son). Instead, we went on Diamox and Zyrtec/Zantac. The symptoms stopped almost immediately. Even more interesting? The need for Diamox stopped as long as we weren’t ‘inflamed’ with an illness or from a poor diet. This is why I got out “The Driscoll Theory” when I did. If it can save others from unnecessary surgery, all the better. Things to consider? Hang in, my friend… 😉

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