Thanks for all of your answers!
A late update, if this interests anyone with similar issues:
I definitely have EDS and got diagnosed (but without type due to a lot of overlapping) and they are still trying to figure out my EDS type.
I don’t have Chiari but cranio-cervical instability and a cervical-spine that looks like I had a whiplash without having it.
I have blocked CSF flow and a pretty long Syringomyelia in my spinal cord as a result.
Some symptoms (only Syringomyelia, not EDS-related):
headaches, chronic pain (in addition to my EDS pain), double vision, pressure sensation, whooshing tinnitus with heartbeat, a lot of passing out,
weakness, fatigue, lameness in my legs most of the time (wheelchair), gag reflex problems, throat swelling sensation, vertigo, brain fog, speech problems, POTS.