Hi Samuel, A syrinx can often be reversed with Diamox (stop me, if you’ve already heard this!). Didn’t they discuss that with you? My kids and I take it as needed for the high intracranial pressure. One doctor mentioned he even reversed an 8mm Chiari with it! Wow! Gastroparesis and organ dysfunction is a HUGE problem with us. I *think* I know what is going on, and will be starting treatment trials here soon. So sorry you’re across the pond, or we’d enroll you right now! Hang in Samuel. We’re chipping away at this… 😉