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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: new here wonder if this is where i start?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Vision › new here wonder if this is where i start? › Reply To: new here wonder if this is where i start?

April 7, 2013 at 4:24 pm #3607
dab78
Participant

thank you, i just want to cry. i’ve been reading all day and there are some many things that happen to me that i didn’t know wasn’t normal. i just read about elevators and have had the same thing happen or when i’m on them everything is moving-spinning. if i stay in a hotel room to many rooms up i can even feel the building moving? i had never heard of EDS or chiari before, where do i start? my kids and i have extremely large heads, my kids all have signs of the same problems that i have, just not as bad yet. thank you, please let me know what i should be doing next. i am going to the cleveland clinic neurology, have had test done for mg, neuromyotonia, autonomic testing in july,emg, muscle biopsy, blood test but no results.

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