NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › The Latest Research › Could Spinal Fluid leak loss be related to EDS +POTs? Epidural blood patches of spinal dura potential fix for headaches › Reply To: Could Spinal Fluid leak loss be related to EDS +POTs? Epidural blood patches of spinal dura potential fix for headaches
I am really interested in this too as my severe POTS began abruptly, immediately after a forceful valsalva. I have severe othostatic headaches although the most disabling symptom for me is the constant lightheadedness & being unable to stand without passing out.
I wonder if the team at POTScare would be able to identify LOW CSF pressure as opposed to high.
I was completely well before that one incident, and suspect I may have a leak.
My supine MRI was reported normal, upright mild hindbrain herniation. Recently had another supine with contrast, this time specifically to look for signs of a CSF leak. No result yet.