I watched the ISNVD interview and I thought it was very informative. You seemed very calm and focussed (I would have been nervous!). You answered her questions very well. However, it was hard to hear some of the questions she was asking. The last few minutes were the most exciting for me, because I was waiting to hear about the Vagus Nerve. It was also nice to hear more of your own personal history/experiences. I just want to say Dr. Diana, that you have given a lot of people hope. You are so brave and so strong to have accomplished all that you have (research, discoveries, etc.) ESPECIALLY since you are a patient. I personally know how debilitating the symptoms are. You are very driven – you have the drive to succeed, and I thank you for all of your hard work. You have given me hope, improved the quality of my life (just from a neck collar!) and I know I will improve even more once I receive evaluation and treatment based on your work.
Oh, MJ, that is SO nice. Thank you so much for your support! I wasn’t nervous (I’m part ham, I think), but I had ZERO idea of what she was going to ask! You may laugh, but a friend of mine had to help me through the conference. She had to practically duct tape me together because I was fighting a kidney stone and a blocked intestine during the conference! So, yes, I guess I am driven! But with so many of us suffering, including so many children and teens who are just starting their lives, I knew I had to do something. Oh, if the cervical collar helped you, I betcha’ Diamox will, too. I don’t know anyone who responded with a collar, but who did NOT respond to Diamox. Sometimes in conferences with patients, I “use that” as a screening tool to see who likely has mild hydrocephalus. Will you let me know? And thank you again, Sweetie. 🙂 Diana