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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: partners of people with these diseases – what do we do ?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › partners of people with these diseases – what do we do ? › Reply To: partners of people with these diseases – what do we do ?

March 17, 2012 at 10:07 pm #1867
Dr. Diana
Keymaster

Hi Wilmaybe, I know we’ve “spoken”, and I’m so glad to see you here. for you and everyone with whom I have not shared this, I wanted to tell you that for a few years, I developed what I considered to be a “flat affect” (I didn’t show emotions very easily). I’m not sure if it was because I was so adrenergic, I just couldn’t without imploding, or if it was part of the Organic Brain Disease. After reducing the pressure on my brain, the emotions cam back in SPADES, and I was a slobbering mess. That all sort of evened out eventually. there is a name that docs/psychiatrists use to describe the social withdrawl that many of us suffer. It’s “sickness syndrome”. I am SOOO eager to get us all on a registry to check our inflammatory cytokines and to treat them if they are out of wack, because I noticed an (almost) complete stop to this when on treatment. Wow. Actually, I couldn’t believe it because I felt as though my brain had melted! There is so much hope for us all, though. I really believe that. As I watch my kids just kind of pop right back to normal (basically), I am in awe of the body’s ability to repair itself, given the right nudge with medication. Hang in, my friend. This is such a rough ride for our partners and children, too. You sound like a rara avis. So many of us have partners with marginal at best, empathy skills. She is a lucky gal to have your caring, even if she is not embracing you right now. That may change. And dare I say it? It can change quickly. Big hug, Diana

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