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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: partners of people with these diseases – what do we do ?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › partners of people with these diseases – what do we do ? › Reply To: partners of people with these diseases – what do we do ?

March 15, 2012 at 5:16 pm #1852
wilmaybee
Participant

Yes I am aware that everything will probably get a lot worse before it gets better. I also know it may not get better at all and may just continue on a downward spiral. I am as ready as I can be for this. There isn’t any resentment at all at this point and I don’t think I will allow any. I was fortunate enough to know her before all these symptoms hit her, and I have been with her every step of the way that she would allow. For me falling in love is more than a feeling one has, it is also an obligation, to stick things out. I have never thrown any of this up in her face and never have any plans of doing that. Even with all that she is going through she is one very amazing lady, and I would feel honored if she but allow me to go down this road with her. Yes I am aware that this won’t be easy. In my heart of hearts my fondest wish is for her to just know I am there or just a phone call away and that I can be trusted with this as well as anything else that might crop up. I have a strong Christian faith and that will carry me through anything. I also accept that no matter what I may be feeling, she is probably feeling worse. Love for me is not about conditions, it is about loving even when everyone else would run and hide. I do thank you for all of your input, I know all of you are going through some pretty tough things as well. I know it may have been an effort to share these things with me. Please feel free to share all that you can with me, I really want to understand and know all I can about this. If she could open up to me I would learn it from her, but she does not seem able to at this point. Please continue to post anything that might be of help. Thanks so much !!

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