NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Did you see the ISNVD press interview? › Reply To: Did you see the ISNVD press interview?
I had kidney stones long, LONG before I ever started on diamox. Mostly when I’m pregnant (what is with that?). So, I am SUPER nervous of getting them now, on diamox and taking SO MUCH bicarb. Argh.
But I also wonder about the EDS component… that my/our kidneys do not work as good as they could because the defective collagen..? And, I have also noticed with me, the last year I guess, that my kidneys (for lack of a better term) don’t drain well (to my bladder) unless I am laying down. Anyone else have that? My doctor is wondering if structurally because of the EDS my kidneys are “dropping” from where they should be and that is why the gravity o them while standing up is effecting them? Anyone?
Can anyone tell me how much bicarb they are taking, just to compare? I feel like I am taking a lot and we still aren’t sure if it is enough to balance my blood chemistry. On 2-3 of the 650 mg tablets of bicarb a day I was still WAYyyyy acidic and my potassium even went below normal range and my platelets went low too. So weird. So now I’m taking 6 a day, with my 4 a day 125 mg Diamox pills (spaced out all through the day/evening).
And, I’m not sure that 4 Diamox is enough.. seems to be enough to keep the migraines away, but my tachycardia is not doing good. My heart rate is only normal if I am laying flat on my back. Sitting up it is around 100 and goes up from there when standing. And that is on this much Diamox. Course, I wonder if the whacky blood chemistry could be the cause of the tachycardia right now? All I know is I am tired of it. When I first started taking Diamox, before my blood chems got so acidic, my tachycardia was completely controlled…. bliss!
One last thought… does anyone know if the Diamox and the bicarb should be taken at different times, or is it okay to take them at the same time? And, are there any other meds or vitamins that shouldn’t be taken at the same time as the Diamox? I’m looking to see if taking all my meds/vitamins together could cause the Diamox not to work as well as it should/could?
Thanks for all your input everyone!