Hi . Sorry I didn’t respond back . So much going on around here. My EDS daughter,16yrs, had to have surgery on her wrist due to a distal ulnar radial dislocation. Only took 3 months and 4 doctors to finally do something. Can you imagine? The poor kid . One doc wouldn’t even give her pain meds even though she was passing out and vomiting from the pain! I fired her butt!
Anyway on to the previous post. Thank you by the way for your responses. This is my almost 15 year old with the sore throat and headaches. She has been taking the zantac and zyrtec and it doesn’t seem to be helping. I didn’t get the other med. The doctor thought allergies and then acid reflux. I am taking her to an ear nose and throat doc, but I also wonder if she has Celiac disease. When she was 6 they did a stomach biopsy that they said was positive . Then they did the blood test which came back negative. Backwards I know, but they decided she didn’t have it because her stomach didn’t show signs. I forget what they called the thingys that they look for changes in. Presently she isn’t complaining about her stomach although I know there are so many symptoms to Celiac. I will bring up POTS but will a ear, nose and throat doc be the one to see for that? Or should I take her to a gastroenterologist or an internist. Who would be able to find out which she has or if she has all of them? After the fiascos with my daughter’s wrist I am losing faith in doctors. I don’t understand why there aren’t more doctors who understand EDS or heck, even know what it is! Can you believe a physical therapist asked me to spell it and didn’t know what it is? I told him right out I couldn’t believe a PT at a bone and joint institute didn’t know what EDS is. Now you see why my screen name is givnmegryhr! Sorry this is so long but I’m always going to doctors. Last month EDS son , 13 had surgery for exotropia. Just one thing after another. I know you all understand. Sorry for the rambling. Just point to what doc to see please for my daughter with the throat and headache issues. Thanks in advance. Everyone take care. And always thank you Dr.Diana for your hard work!