I am new to this and any forum. This post regarding csf leaks reminds me of myself. My Canadian, BC and Seattle Washington doctors have advised me to learn to cope with my symptoms but do not have any help to offer. I do not have any medications or suggestions other than look for help to cope.
Is it just me? I equate “learning to cope” with “giving up”. No, there are medical explanations for our illnesses, I have no doubt. Amina, could no one in Seattle get you some Diamox to try? If you have no contraindications (like sulpha allergy), it would seem to be such a low cost/low risk option for you that may give you some well-deserved relief! Doctors prescribe it routinely for going into high altitudes. Sometimes the medical profession can be incredibly frustrating. Been there. Got the T-shirt! Cope — Schmope. We need answers! Dog-gone-it!!! Working on it!