Hi! I’m new to the forum but not to Dr. Dianna’s page & interesting work. I totally understand the people who are saying that they don’t know how much more they can take. I’m in the same boat. If it wasn’t for me giving these horrible diseases to my children & a husband that’s doing his best to do everything I would have killed myself a long time ago. People wonder why we have crazy people doing such crazy things. I’d never harm anyone else but it’s impossible to get mental help unless u r rich or on Medicaid. But I’ve got to stay here & fight this pain, this hell everyday so I can be an advocate for my 3 boys. In the mean time I’ve got to figure out how to get off some of this pain medicine I’m on. I’m on the pain regimine of a stage 4 cancer pt & still stay n the bed most days. But the meds & ins r costing us to much $. I just had my 2nd tethered cord surgery (my cord ended up being tethered in 2 places), had my pressure checked & it was 32 & I had been taking diamox up to 1wk b4 surgery. It totally knocks me out. I’m only taking regular 250mg & even if I 1/4 them if I was to get pulled over I look like I’m stoned or something. I won’t drive w/my children w/me b/c I’m afraid I’ll wreck. My Dr. Wants to put in a lumbar shunt but said it may only last 8-12mos & I’ve talked to other patients that it caused their cerebellum to hernitate again even though they’d been decompressed. I’m so confussed on what to do? Giving up just seems like it would be better for everyone!!
CM, EDS,POTS, Basiliar Invagination, Retroflexed Odontoid, Eagles Syndrome, Fibromyalgia, Chronic Fatigue, Scoliosis, Kyposis, Pseudotumor Cerebri, too many to name!