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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: New here–here's my tale of woe

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › New here–here's my tale of woe › Reply To: New here–here's my tale of woe

January 10, 2012 at 7:25 pm #1654
Dr. Diana
Keymaster

Welcome home, Bendychick! 🙂 I think you’ll see a lot of similarities in your symptoms with most everyone else here! (Palomino — I’d forgotten about what Dr. Clair said — that was SO FUNNY!). Bendychick — Palomino, another EDS friend and I were all standing, towering over the wonderful Dr. Clair Francomano. It was pretty funny, but she is right — only one phenotype is like that! 🙂
If I had to guess, I’d say that you fit The Driscoll Theory to a “T”. Did you see it on the site? Palomino is giving you great advice. I, too, get the impression you are dealing with mast cell disorders and hydrocephalus.
Please take a peek at the theory and see if you and your doctors agree that a trial of Diamox to reduce your pressure and double dose Zantac/Zyrtec doesn’t make sense to you. If you respond well, then full treatment is likely in order. And, wow, can it be life changing!

So glad you’re here!!
🙂 Diana

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