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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Refused Testing By EDS Specialist

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Refused Testing By EDS Specialist › Reply To: Refused Testing By EDS Specialist

June 20, 2013 at 11:34 am #3794
Dr. Diana
Keymaster

I second that! Barb is a bundle of knowledge! Can you tell us why YOU think you have EDS? Perhaps we can brain storm with you. Do you have POTS/dysautonomia? I know of one man who has EDS but who didn’t really appear hypermobile. Dr. McDonell (in the states) asked him to put his foot on his forehead,and she looked for hypermobility in other ways. My skin is stretchy in certain places only. That seems pretty common. I know of one family of 5 – 4 of whom are hypermobile and have the EDS diagnosis. The fifth one is not hypermobile — but get this. She develops POTS/dysautonomia just like her other 4 siblings! What is up with that? There is more to this than we understand, certainly! Meanwhile, please share your symptoms/signs with us and we’ll see what we can do! 😉

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