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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Refused Testing By EDS Specialist

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Refused Testing By EDS Specialist › Reply To: Refused Testing By EDS Specialist

June 14, 2013 at 2:13 pm #3772
Lab-Scientist-Lady
Participant

I agree you need to find another doctor. I have been to so many doctors in my life time. I could fill a football stadium. Only about ten percent of doctors are good doctors. The rest scooted by in school. Believe me I use to teach residents. Far to many are a doctor for the wrong reason. I am sorry you wasted the time going to a bad one. Find another. Make a list of all your symptoms and those of your family members. After all not everyone with EDS is hyper-mobile or show the hyperlastic skin. Try a dermatologist for the skin biopsy. That is what I had to do. Then they can refer you on to another specialist. Also remember that the skin Bx is not fully diagnostic, but it can help. I wish you all the best. I am new to all this EDS stuff, even though I have been sick and had all the signs all my life. It was me that went and showed my doctors what I can do and what all my life long health issues were. Sad to say but I had to take charge, and I will have to do it for my kids too. One day at a time, and sometimes one hour at a time. Good luck and keep us posted.

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