Hi PhoenixDown, If you really want a diagnosis and need a second opinion, I would ask Barbara on this forum if she could recommend someone for you. We all grow weary of doctor-shopping (BEEN THERE) and word of mouth is likely your best bet. I’m in the states and don’t know who to recommend for you, but I will say that MUCH is still to be learned about our condition, and even the “specialists” are a bit puzzled. You are not alone in your frustration. :-/