• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: New here–here's my tale of woe

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › New here–here's my tale of woe › Reply To: New here–here's my tale of woe

January 10, 2012 at 3:20 pm #1650
PalominoMorgan
Participant

Welcome my twin. Seriously. We share a lot of the same symptoms. My back sounds like yours but is a train wreck when you see the lumbar and cervical MRI. I was diagnosed last August after I self referred to Dr Francomano. My PCP told me I didn’t have the eyes for EDS. Huh? Per Dr F I do have grey sclera though. Guess she wanted me to have blue? Anyway, per my picking on DrD, myself, and a friend of DrD’s in DrFrancomano’s office about all the tall women there and “what was that stereotype about EDS and tall women?” DrFrancomano replied, “only one subtype. Only one subtype.”. I was feeling short at 5’10” in the waiting room but there are lots of bendies who are not tall.

Anyway, welcome. You are definitely in the right place. You sound like you have EDS, possibly some mast cell issues as well, and those headaches sound an awful lot like high CSF pressure headaches. Try sleeping in a soft collar at night and see if you notice less headache when you wake up. I know it makes a huge difference for me. Raising the head of the bed a few inches can help a lot too.

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020