I am not sure if this is the place to reply to your post. Hopefully it is. The Seattle doctor offered psychiatric, internal medicine and rheumatology consults. No diamox or help with the intense pressure in my ears and head. No testing for csf leaks and no answers for all the facial and scalp swelling, not to mention the POTS symptoms. In BC my many consults have not added any information to help me. I can’t believe this all started with a dermatology consult 10 years ago. Back when I could function. I suppose I’ve always dealt with symptoms but was able to brush them off or thought it was ‘normal’. I hope the neurosurgeon can help but have no idea if I will get to see him. Yes I could use some positive and if diamox helps I would try it even with a sulpha allergy. I’ve read the allergy to sulpha as antibiotic differs from Diamox.
Thank you for the cheerful support.
Smarty! Yes, most people don’t end up having an issue with sulpha… Idea! Here is a blogger with pointers on asking for Diamox: http://slingsandarrowsofoutrageousfortune.wordpress.com/2012/12/20/diamox-pointers/ I hope that helps! Hang in, Hon…