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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Where do I start if I think I could have a Mast Cell Disorder?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › CCSVI › Where do I start if I think I could have a Mast Cell Disorder? › Reply To: Where do I start if I think I could have a Mast Cell Disorder?

February 21, 2012 at 12:55 pm #1755
Jennifer
Participant

Thanks for the response! Yes, I think I am going to start with allergist too! How old is your daughter? I had a LEAP-MRT
test for food sensitivities done by my osteopathic doctors and it did show some sensitivities that I was unaware of that were
helpful- sodium sulfite being high up there. I would have had no idea I was reacting to that had I not had that testing.
I think the ELISA is similar, but neither test is offered by any allergist I found. My osteopathic/holistic doctors also had me
also undergo a comprehensive stool analysis (CDSA) and that was just completed and did show some bacteria and DNA from an
unknown parasite. So now they want me to treat those so we’ll see what happens! I think I am going to start with the allergist
myself to ask them to run serum Tryptase and Histamine ( If I am spelling those correctly). I think those are the 2 tests that
should be run first- If anyone else has any other suggestions please let me know!

Thanks again for your response and goodluck with your appointment! Jen

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