• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: New Here, daughter with EDS/Chiari/High pressure/CRPS/Mito

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › New Here, daughter with EDS/Chiari/High pressure/CRPS/Mito › Reply To: New Here, daughter with EDS/Chiari/High pressure/CRPS/Mito

July 2, 2013 at 9:41 pm #3863
Dr. Diana
Keymaster

Hi Donnadear,
Many of us face the “to clot or to bleed” issue, I’m afraid! My mom recently had her third ischemic stroke, and when they started the blood thinners again, she had a brain bleed. Yikes.I’m back on Diamox again, and trying to figure out why I went so many years without needing it, then needed it, then didn’t need it, and now I need it again! I guess we’re not easy patients, huh? As far as IV fluids, I think every case is different. I like to look at EVERYTHING as we try to figure out how to return to homeostasis. For my kids and I, hydrocephalus was such a problem that even salty foods increased our hydrocephalus symptoms. Florinef put me over the edge, and I imagine the top of my head would likely blow off with an IV. Ha. No, that’s not true. I had an IV of saline recently to flush out the CT dye, and didn’t notice any difference. 😉

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020