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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Starting Diamox!!!

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Starting Diamox!!! › Reply To: Starting Diamox!!!

July 16, 2012 at 4:31 pm #2625
Barbara
Participant

. . . . . Go barbie! Go Barbie! . . . . . . Yeaahhh!

Finally got the go-ahead for Diamox!!!!!! Managed to get a ‘short notice’ appointment with a Neuro-opthalmologist today. There was only something slightly untoward in my eye, I remember he said slight inflammation but I can’t remember whether he said optic nerve or sheath, anyway, it meant he was happy for me to try the Diamox, yippee!! I never thought I’d be excited about obtaining drugs. He did say to watch my potassium, to have a banana a day.

He first suggested the ‘slow release’ version but something in my head said that that’s not as good – have I imagined this ?! Is it a capsule or a tablet (and how big is it because I do have swallowing issues?)

What’s the best way to start taking it? and get the best from it ? any advice greatly appreciated.
Regards
Barbara
(UK)
Head & Neck Injury (June 2002); Mild Concussion; Post Concussion Syndrome; Postural Orthostatic Tachycardia Syndrome (POTS); Peripheral Vestibular Dysfunction; Mild Radiculopathy & Small Fibre Neuropathy (right leg & foot resp.); Partially Empty Sella (Oct 2002) Fully Blown Empty Sella (Oct 2004); Whiplash Associated Disorder (WAD); Cerebellar Ectopia (Chiari 0); Cranio-cervical Instability (CCI) with Posterior Gliding (PG) & Cranial Settling (CS); Brain Compression; Retroflexed Odontoid; Stretched/Elongated Brainstem; Vitamin D deficiency; Ehlers Danlos (EDS) type 111; and now Osteoarthritis! and oh, I forgot Arrhythmias – confirmed as runs of Bigeminy and Trigeminy.

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

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