I’m new to the forum but not new to the condition (EDS, POTS, CCI, etc), which I have suffered the consequences of for the last almost 10 years, since I had a head an neck injury.
Having worn a collar since 2007 and tried several en-route to finding the best. This is my analysis, based on my experience:
2/10 Basic Soft collar – doesn’t cradle the head sufficiently to aid correct CSF flow.
4/10 Aspen collar – unfortunately doesn’t support the natural curve of the neck enough.
6/10 Johnson CTO (Metal Jacket)- excellent support for head but not neck which soon aches.
9/10 Philadelphia Collar – Excellent support for head and natural curve of the neck. It
maintains the head and neck in good relation to each other, aiding CSF passage
through the cranio-cervical junction (between head and neck). I had a gross
reduction of my symptoms from the first day I wore mine, some immediate, some
eventual. Point of note: You do need to wear collar linings with this one!!
Hope this helps, as it might not be the right type of collar that you are using, that’s all,