NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › New Here, daughter with EDS/Chiari/High pressure/CRPS/Mito › Reply To: New Here, daughter with EDS/Chiari/High pressure/CRPS/Mito
IV fluids (multiple bags) are the only way to get out of a bad POTS attack for me, but they do give me a huge headache! Slow drip IV’s don’t give me a headache, but it has to be really slow. Florinef put me over the edge too. Also, like you Dr. Diana, what worked last year isn’t the same as what is working now and it is ever changing. Some things work well for a time, then randomly stop working. That seems to be common with hyper POTS.
Absolutely, ourfullhouse! It’s hard for US to know what is going on in our bodies on a daily basis. Imagine being one of our doctors who has no clue what they are even trying to figure out! I strongly believe this condition goes through “phases”. You and I can probably both recognize what “phase” a patient is in fairly easily! Hang in… 😉