NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Did you see the vid about the end of my POTS? Please respond if you're interested in the clinical trials! › Reply To: Did you see the vid about the end of my POTS? Please respond if you're interested in the clinical trials!
Yes, just watched the video. I am trying to understand, are you talking about a clinical trial involving CCSVI/ angioplasty for the clinical trial, or something different? P.S. I have pictures of me laying down, where my vein in my neck gets large like yours does in the video.
I am very interested in the clinical trials.
Hi MattiesMom, the trials we will start with will be used to address POTS medically, and then the HORRIBLE fatigue and brain fog. I could not believe how reversible this was when properly targeted! If we need angioplasty, we will go for that only when the CAUSE of our vessel damage is treated properly first. I don’t believe we will end up with “traditional” angioplasty. We’re “special”. 🙂 When the time is right, I’d like to bring in someone who can get up to speed about our special issues. Otherwise, I fear that many of us will end up with further vessel damage, and will be very prone to thromboembolism (and the treatment won’t hold, of course).There is a better way to do this! Meanwhile, we need relief with our POTS, fatigue and brain fog. I humbly believe I can help us with that. (Remember, I’ve been to Hades and back. I truly believed that my brain was melting… I couldn’t stand up longer than I could hold my breath. Did you notice that I give my talks STANDING UP now?) 🙂 Let’s do this!