I wish doctors would have to recertify every so often to stay up to date and I feel like ripping my hair out if I have to explain to another nurse what dysautonomia is or to listen to another doctor explain how some of the medicine I am on can cause my symptoms even after being told the medicine was started after the symptoms began and has helped some. Sorry so long just needed to vent some frustrations.
I understand, Robert, believe me!! Remember, most of this is brand new science, and although doctors take CME every year, it is SO HARD to keep up with everything. The best doctors we have researching this condition are usually personally affected. It sucks, I know, but the reality is that they must be PAID, the Universities need to justify the costs, and honestly, we are EXPENSIVE to figure out!! There are soooo many layers to our onions, if you will. That is one reason I just released information as I figured it out. We’ll be paying for our own clinical trials, Heaven help us. 😉 We’ll get this, OK? Big hug….