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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

Reply To: CAN YOU BECOME IMMUNE TO THE NECK BRACE?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Skin › CAN YOU BECOME IMMUNE TO THE NECK BRACE? › Reply To: CAN YOU BECOME IMMUNE TO THE NECK BRACE?

April 27, 2012 at 3:58 pm #2063
MJ
Participant

Hi Barbara.

That’s interesting that you mention sleeping sitting up. I can’t keep my eyes open about mid-day and have to nap and I started to nap sitting up on the couch with the collar on. I noticed if I wasn’t horizontal, the tachycardia, burning up, SOB (shortness of breath), red & hot swollen toes, weakness and all the other crazy symptoms weren’t quite so bad after the nap.

Thanks again – this will be of great help until I can find a doctor that will read TDT Part 2. You mentioned you had a head and neck injury that made things worse for you. Can I ask what happened? I had a severe neck injury 24 years ago. I was skiing and wiped out on ice and my head whipped back so hard and hit the ice. I tore everything from my ear to my collar bone. I believe this ‘set everything in motion’ for me. I have POTS, EDS, Raynaud’s, opposite of Raynaud’s, PTSD, to name a few.

MJ