That’s interesting that you mention sleeping sitting up. I can’t keep my eyes open about mid-day and have to nap and I started to nap sitting up on the couch with the collar on. I noticed if I wasn’t horizontal, the tachycardia, burning up, SOB (shortness of breath), red & hot swollen toes, weakness and all the other crazy symptoms weren’t quite so bad after the nap.
Thanks again – this will be of great help until I can find a doctor that will read TDT Part 2. You mentioned you had a head and neck injury that made things worse for you. Can I ask what happened? I had a severe neck injury 24 years ago. I was skiing and wiped out on ice and my head whipped back so hard and hit the ice. I tore everything from my ear to my collar bone. I believe this ‘set everything in motion’ for me. I have POTS, EDS, Raynaud’s, opposite of Raynaud’s, PTSD, to name a few.