• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: Stomach ailments. Mast cell, pots, eds ???

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Coping › Stomach ailments. Mast cell, pots, eds ??? › Reply To: Stomach ailments. Mast cell, pots, eds ???

September 9, 2012 at 8:36 pm #2908
Dr. Diana
Keymaster

For GI-based mast cell issues, oral Sodium Cromoglycate (aka “Nalcrom”) in capsule or liquid form seems to be the best thing. The dose I take is 600mg per day (6 capsules) and I’ve seen other people on 8 per day. For me it helped a lot with nausea, diarrhoea, bloating, and reflux.

The main drawback in my case is that it’s fairly expensive for me but that will depend on your insurance situation! Everything I’ve read seems to indicate it’s a quite safe medication to take.

Cheers,
r

Thanks, Jeshyr! We used the capsules for a while, too (had them made from a formulating pharmacy). The only drawback is that the contents of the capsule are supposed to be mixed with water before drinking. Ugh. That stuff is hard to dissolve! Most of it ended up sticking to the sides of the glass, we noticed. Ketotifen is a small pill available out of Canada (and other countries) — it’s taken twice a day. Most doctors can order that for you, too. Another option… 🙂

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020