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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Starting Diamox!!!

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Starting Diamox!!! › Reply To: Starting Diamox!!!

July 16, 2012 at 4:49 pm #2626
Prettytired
Participant

Yay!! I think Dr. Diana said she had better results from the regular release kind, but I don’t remember where I read that. The 125 mg tablet is about the size of my pinky nail and very thin- very easy to swallow.

I got it from my primary doctor, so he kind of just blindly gave it to me. While I’m glad I have it to try, I’m not sure he really knows the best dosing, monitoring, etc. He suggested 125 mg/x2 day. I’m doing 62.5 mg at 9 am, 62.5 mg at 3 pm, and 125 mg at 9 pm. I have noticed a minor improvement in energy levels… just have to ignore the rest of side effects :)!!

The first couple days I was peeing like crazy, but was having an increase in head and neck pain. I had mild tingling in my hands, feet, & face. I could also FEEL the pressure changing in my head. In the last few days, the peeing & tingling slowed down and so did the headaches/neck pain. I then went through a bout of dizziness. I haven’t started the sodium bicarbonate yet, but really need to. I’m wondering if I’m getting too acidic already and whether or not the Diamox is still working.

Best of luck to you!!

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

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