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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Medications for Mast Cell, POTS, Chiari, etc.

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Medications for Mast Cell, POTS, Chiari, etc. › Reply To: Medications for Mast Cell, POTS, Chiari, etc.

April 24, 2012 at 5:13 pm #2046
Megan
Participant

Thank you to everyone and Dr. Diana for always listening!

Update: I stopped florinef and low and behold my headaches have much improved! I also went off Singulair….my mom had actually noticed my moods drastically changing when I was on it, but at first I didn’t attribute it to the singulair. I had higher levels of anxiety, emotional instability (i.e. feeling like crying for no reason). Even my dreams were very vivid and unpleasant! I am happy to be off of it.

I’m planning to talk to my allergist/immunologist about a LOT Of things. I actually put together a chart listing out my cortisol levels, ACTH, and thyroid levels over the years to give to my doctor. I think it’s important to take a history of what has been going on, instead of just looking at one number in the present. My ACTH, cortisol, and thyroid have been doing some very funny things!

Next steps: mast cell stabilizer, possibly switching allegra to zyrtec, addressing thyroid/adrenals, hormone levels/birth control.

Thank you so much for all of the insight and help!!!! 🙂

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

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