• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: CAN YOU BECOME IMMUNE TO THE NECK BRACE?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Skin › CAN YOU BECOME IMMUNE TO THE NECK BRACE? › Reply To: CAN YOU BECOME IMMUNE TO THE NECK BRACE?

April 9, 2012 at 10:23 pm #1970
Dr. Diana
Keymaster

I have been wearing the neck brace for a few months now, and I felt 75% better as soon as I put it on. However, I think it is losing it’s effects. I am in such a period of exacerbation with ALL of my symptoms (especailly PTSD), that the neck brace seems to be having very little or no effect at this time. I’m not even sure that it is helping with the pain. My stress levels are through the roof, I’m extremely irritable and I have also experienced rage. I believe it is because of the pressure in my head. Any advice (can’t get to the doc’s b/c of PTSD)?

Hi MJ,
I noticed after I reduced my intracranial pressure with Diamox, that after about 1-2 months, I just didn’t need the collar much any more. Are you on any medications yet? Diamox? Mast cell treatment? I agree with you that your intracranial pressure may be to blame for your symptoms. There’s a fair amount of research out there that would agree with that. Dr. Franz Schelling has researched a fair amount about this subject, and with what I learned about the effects the resulting inflammatory cytokines (from stress, trauma, viruses, etc) increasing inability to drain venous blood and CSF, I think you are spot on. I’m guessing that it is not an “immunity” to the collar, but an exacerbation of your intracranial pressure and thus your symptoms. Can you get some help getting to the doctor? I don’t know of much to help (beyond meditation, etc) to help until then. But music, meditation, etc CAN be of some help. Big hug…

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020