For many years now I have had severe gingivitis (pockets) on my top jaw only, and I have always wondered why. And I am sure it must have been gradual, but I have just noticed (LOL!) that I no longer have an upper lip! It was always thin, but now it pretty much no longer exists. After many searches on-line, I have come to realize that the blood supply to my upper lip and upper jaw is most likely compromised. I have EDS, POTS, arthritis in my entire spine, PTSD, Raynaud’s and the opposite to Raynaud’s, among many other things. I have all of the things Dr. Diana speaks of that would indicate compromised blood flow to the brain (e.g. pain at base of skull, head aches, etc.). I think it is very odd that only my upper lip and upper jaw are affected, and I am wondering if anyone has anything similar to this, if anyone has any ideas on what could be causing this or if anyone has any comments on my theory about the blood supply. Thanks.
Hi MJ, I wish there was a quick answer for this one! Has anyone else experienced this? I’ve seen a lot of gingivitis with our inflammation, but not just on the top jaw. Since you have some symptoms of hydrocephalus (the pain at the base of your skull), I wonder if you’ve tried to decrease that pressure and if so, if that helped? What do your doctors say? I would think they’d be interested in looking at the blood flow in that area. At a loss, I return this question back to the masses. Anyone have any thoughts? Thanks so much. 🙂 Diana