• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: Where do I start if I think I could have a Mast Cell Disorder?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › CCSVI › Where do I start if I think I could have a Mast Cell Disorder? › Reply To: Where do I start if I think I could have a Mast Cell Disorder?

May 4, 2012 at 2:33 pm #2110
Jennifer
Participant

Hello. I just wanted to give you an update. I did go to the allergist and they ran the tryptase test and some other blood work all which was all negative. All my tests over this past 10 months have been negative. The allergist did let me trial gastrocrom though and it has made a world of a difference! I can now eat somewhat back to normal again! It has really helped me. I suspect I may have some type of mast cell activation syndrome that has not been diagnosed, but have not been able to prove that yet.

Also, interestingly enough my holistic doctor did find an underlying protozoa parasite that was treated once with antibiotics. It also needs
to be treated with herbs, but I get skin rashes with so many herbs combined that I am having a hard time following that protocol.

Anyways, now I am going to just continue to take my sodium cromolyn and hope I continue to feel better. I don’t know if I will have to
take it from now on or not at this point…. I am now realizing that I have some pretty bad sinus pressure which is the next issue I will have
to try and find relief for!

Goodluck with your daughter’s appointment!

Jen

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020