• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: Quercetin, anyone?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Skin › Quercetin, anyone? › Reply To: Quercetin, anyone?

March 19, 2012 at 6:02 am #1880
Debbi
Participant

Hi Jen!

I am so happy God led me to Dr. Diana’s site. Dr. Diana and all of her information is giving me hope again. The last 2 years has been a nightmare with my son. His story is a very long one and I have known for 9 years his seizures were caused from something else. Seizure medicine never controlled him in fact they made him 100% worse. We quickly seen FOOD was his trigger. His episodes were “eye twitching” and zoning out in the beginning and usually came after eating and nights would be worse if he ate the wrong foods. No one knew he had seizures until Caleb hit puberty.

2 years ago at puberty, our lives changed quickly. After getting on the Modified Adkins diet he did good for a couple of weeks and then things went really bad. They had changed his seizure meds to Topamax which most seizure medicine made him 100% worse. He was drinking at least a gallon of cream a week and meats (which is high histamine–especially the cream since it was pure right from a farm). Now….I believe I know why things got horrible. But….it lead me to the true reason….the mast cell connection. He now has been diagnosis with POTS (fainting and vitals are real low)….and now waiting results from the histamine/mast cell labs. I am just so scared that the labs won’t diagnosis him. The medical world just doesn’t get it… My son at his worst didn’t know his name….and if he talked it was “slow” like a stroke victim… He hasn’t been in school now for almost 2 years. He used to get A’s in Algebra in 6th grade and now struggles with simple math. We now do home schooling (virtual) and he can only handle a hour a day (if that) of schooling. I worry the most about his cognitive issues…he does off the wall things that I fear he could get hurt. Praying we all get our answers soon!

Thank you Dr. Diana for this wonderful site! I am telling everyone on my facebook support groups about you! You are giving us hope again!

Also….now Caleb is seizure free first time in 9 years!!!! Yes….seizures can be a symptom not the diagnosis… I want to be able to help others families now….I am praying I have a chance to tell Caleb’s story so he can help others…

Have a great day!

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020