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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Zonisamide vs Diamox

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Zonisamide vs Diamox › Reply To: Zonisamide vs Diamox

June 15, 2017 at 7:04 pm #6181
Yvette
Participant

I am not having seizures at all. I believe I am having high inter cranial pressure. I have spontaneous CSF leaks out my nose that has been confirmed but no one wants to treat me for pressure. I am told I don’t fit the description I have very low blood pressure and I am not overweight. My doctor first said to take diamox then she said she wanted me to take something on a regular basis and that the diamox is not for regular use. My physical therapist contacted my doctor yesterday concerned that I am having Vertebralbasilar insufficiency but I haven’t heard back from her. And now I have a family emergency and need to travel I can’t go above 5000′ elevation without feeling like my brain is going to explode. So I am not sure why she gave me zonisamide and I’m a little uncomfortable about it. She did give me diamox for the trip to use at high elevations. I am at sea level right now and I feel like my head is going to explode so I am not sure what seizure medication can do for that? I was really hoping someone had experience with this drug and knew why I was given it?

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