Susan, We are all excited to meet you next week! I didn’t make the connection and didn’t realize you were one of the patients — that’s amazing! The power of the internet. 🙂 As you’ve experienced, it doesn’t look like most of us fit the typical model for POTS — much, too much has been missed in the past. Although we are not all alike, if we start to view our condition from a slightly different angle, it becomes clear that the traditional treatments may not be helpful, and can even be harmful in the long run. I’m so, so glad you saw our work and you were able to get some relief from Diamox. I remember well my response and that of my kids, and how SHOCKED the doctors were. Ditto antihistamines… I look forward into digging into your case and helping you with aspects that have perhaps been missed. Travel safely…