I am glad to know that I am not the only one who believes that we have vascular issues, I am almost positive my Grandmother died from EDS. I am also on Cromolyn. IT IS A PAIN IN THE BUTT! I live in the US so I am not exactly sure how I should get my doctor to go about Ketotifen. Is Quercetin easily available too?
Also, what are some good supplements for EDS (I was told just vitamin C)? I took a multi-vitamin and pro-biotics before being diagnosed with EDS, & Mast Cell Disorder (still trying to figure out if it is MCAD or Systemic Mastocystosis) I just had a bone marrow biopsy on Tuesday! WORST THING EVER!!!
I can never thank you, Dr. Diana, for all the research you have put into this. It feels so good to finally be getting SO many answers after SO many years of suffering! 🙂