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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Mast Cells & EDS

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Mast Cells & EDS › Reply To: Mast Cells & EDS

July 5, 2013 at 8:14 pm #3871
Lab-Scientist-Lady
Participant

I originally thought I had hypermobility like my Mom, but it made since when the Geneticist told me bc of my POTS and MVP and the way my skin is and bruises I had Classical. Makes sense, so I figured they just misdiagnosed my mother. It just worries me that I could still have Vascular although both Geneticist told both my mother & I that I shouldn’t worry we have too many other symptoms that it couldn’t be vascular — and they wouldn’t even offer to do the testing.

I don’t know my type yet, but I hope the check me for the vascular form. There are a lot of overlapping symptoms and it is possible to have more than one type. I hope you still see a cardiologist for monitoring. All of us EDSers have a risk of vascular rupture.

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