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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Lupus?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Skin › Lupus? › Reply To: Lupus?

July 2, 2013 at 7:00 pm #3857
Susan330
Participant

Dr. Diana,
I have had a positive tilt table in the past. My BP dropped to 52/30 but I was still conscious. I always lose my vision and my hearing but I’m still able to feel my surroundings and talk a little. But, I do not remember if I had trouble with my heart rate on the tilt table. My heart rate stays about 140-150’s with minimal exertion. I also have SVT and my HR will jump up to 260. I have 90% of the symptoms of Dysautonomia, but I can’t find any of my specialists to really help treat any of it. (I see rheumatology, neurology, cardiology, electrophysiology, nephrology, urology, gastroenterology, internal medicine, and allergy specialist). They always suggest beta blockers that I cannot tolerate. I see that you speak a lot of Diamox. Does it treat the dysautonomia directly? I don’t really understand how it works.
Thanks so much.
Susan

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

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