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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: 11 y.o. with Dx of Pseudo Tumor Cerebri – Help!

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Vision › 11 y.o. with Dx of Pseudo Tumor Cerebri – Help! › Reply To: 11 y.o. with Dx of Pseudo Tumor Cerebri – Help!

August 23, 2015 at 8:43 pm #5637
Barbara
Participant

No probs.
Hey I agree with the reduced potassium level thing, I’d been on my Diamox over a year before mine went below normal, so 6 months is certainly too short a study. Dr Diana doesn’t recommend the slow release Diamox either.

Have you thought about getting her into a Philadelphia collar (with linings), she’ll hate it I know to start with, as it feels so cumbersome and you have to clean it every day (especially in the hot weather) but when she realises the difference it makes to her symptoms, she’ll start to appreciate it. It’ll help train her own muscles and ligaments to hold her neck and head in a better position. Even if she just wore it intermittently to start with, she may see a difference.

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