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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

Reply To: Dry Eyes, Dry Nose and reduced sense of smell, Dry Mouth and excessive thirst.

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Vision › Dry Eyes, Dry Nose and reduced sense of smell, Dry Mouth and excessive thirst. › Reply To: Dry Eyes, Dry Nose and reduced sense of smell, Dry Mouth and excessive thirst.

August 8, 2012 at 4:37 pm #2729
Barbara
Participant

I’m curious about these things because I’ve recently been looking into where and how CSF (Cerebro Spinal Fluid) get’s absorbed back into the system. If we (EDSers with POTS) all have an excess of CSF in the brain area, what’s going wrong that it is not being absorbed at the rate it’s being produced ?

I’ve been reading a research paper showing that some of the outlets, of CSF fluid from the brain area, include the eyes and the nose, yet my eyes and nose are notably dry. I know that when you have dry eyes, dry nose and dry mouth, it can be diagnosed as ‘Sjogrens’ and this I believe is caused by the immune system reaction.

I know Dr Diana has linked immune system problems (Mast Cell Activation) with our condition and, as such, I would like to know if anyone who has had dry eyes, nose or mouth, has noticed any improvement, once they’ve been on the H1 and H2 treatments (Cetirizine and Zantac) for quite a while?

I also wondered whether maybe the pathways, to these outlets, were being restricted by the brain bearing down on them (because of excess fluid above the brain) which might explain why Diamox might make a difference. I would be happy to hear anyone’s experiences or comments on this
Regards
Barbara
(UK)
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Head & Neck Injury (June 2002); Mild Concussion; Post Concussion Syndrome; Postural Orthostatic Tachycardia Syndrome (POTS); Peripheral Vestibular Dysfunction; Mild Radiculopathy & Small Fibre Neuropathy (right leg & foot resp.); Partially Empty Sella Oct 2002 (worse by Oct 2004); Whiplash Associated Disorder (WAD); 3mm Cerebellar Ectopia (Chiari 0); Cranio-cervical Instability (CCI) with Posterior Gliding (PG) & Cranial Settling (CS); Brain Compression; Retroflexed Odontoid; Stretched/Elongated Brainstem; Ehlers Danlos (EDS) type 111; Osteoarthritis; Arrhythmias (Bigeminy and Trigeminy). . . and now Mitochondrial Dysfunction, Mineral (Mg,Mn,Cu,Zn,Selenium), CoEnzymeQ10 & Vitamin (C,D,B3,B12) Deficiencies!