Thanks for the replies 🙂 (ummm the smilie here looks like its rolling it’s eyes at people. Lol I’m not)
Her Doc and I have discussed mcas and will likely treat for it since she has had allergies most of her life and is now having skin reactions to many things. She has since birth eaten a very clean healthy organic diet which does not include caffeine etc. One of the first things we did upon the different strange symptoms coming up years ago was have her allergies tested and followed elimination diets etc. As far as treating mcas it’s just a matter of working out if current meds and the allergy meds are all safe together and we need to wait through the transition of insurance to sit down with her Doc to discuss it.
I do have a question in regards to the MRI and chari. I read yesterday it’s easily missed with MRI’s that you lay down in and that it should be a standing MRI. Any one have thoughts on if this is accurate?
I believe recently there has been a research paper in Scotland that shows that the upright MRI picks up more cerebellar tonsillar ectopia (for those that don’t understand the terminology, this is where the hindbrain falls through the opening at the bottom of the skull) in people who have had a whiplash type injury.
I have to say that I personally didn’t notice a difference in mine, between the supine and upright MRIs. They both showed my hindbrain was trying to escape but in both, I didn’t quite meet the 5mm level of ectopia that they seem to deem necessary to confirm Chiari Malformation 1, so I guess I’m just a ‘Chiari 0’.