I am so very sorry your daughter has to go through this. I am so sorry such a young person must suffer. At 32, I am starting to get extremely depressed dealing with all my symptoms, being disabled (unable to work or do much of anything fun or even care for my daughter at times), and worrying about my prognosis. I cannot imagine being so young and dealing with the same. I have only officially been diagnosed with POTS Dysautonomia since April but I have been suffering 3 years. I have honnesly had trouble finding help with my heart rate (which jumps from as low as 24 to as high as 250) and blood pressure (which tends to be very high at times and only dropped very low several times that I am aware of). At first the beta blockers helped (two kinds tried) but then the symptoms and tachycardia came anyway. Drinking lots of water sometimes helps. Oddly, wearing a soft cervical collar has helped some recently. Taking my time to get out of bed in the morning (when I wake I have to lay for about 15 to 30 minutes then slowly sit up and sit for ten minutes before standing then take it easy the first hour I am moving about). Laying on my left side sometimes helps. Sadly, the episodes of tachycardia with some bradycardia and hypertension still come and usually when I least expect it, though I know if I am sick, get less than 9 hours sleep, have my period, or am very upset/stressed that I will have trouble guaranteed. Anyway, I really hope and pray your daughter finds relief. I wish I knew some surefire ways to help her. I wish your family the best of luck and renewed health.
Ang.