She does wear compression stockings but only knee high because her hands are really effected by the eds and so they just don’t work like most hands. She just got to where she can button/unbutton pants. It’s as if her brain can’t tell her hands what to do and her hands just can’t do the motions needed for some things. It was an exciting day though when at 12 she was finally able to do the buttons and did not need to worry anymore about what she wore places. Sometimes she still can’t but can most of the time. Her hands looks different than most. They’re very flexible and kind of sausage like fingers and oddly shaped. A doctor asked about her thumbs because they’re odd looking but then never said anything further. Writing is very hard for her to do more than a few mins. Its hard to explain her hands.
We have been looking for some fun compression knee highs for school, so I will check those out SweetFeather. Thanks.
In regards to the MRI/MRA results are there questions I should ask? The doc ordered if to check for chari and to be sure her blood vessels aren’t compromised and of course to be sure everything looked normal given everything that’s happened. If the one aspect leaves me with questions or concerns, I can always ask a neurologists opinion. Guess I will know more tomorrow.
As far as new meds/tests we have a to wait a little while for insurance to be all straightened out. At this point we still do not have her insurance numbers etc. hopefully they’ll be quick so we can get her as stable as possible before school begins in sept.
(sorry for typos and autocorrects I may have missed. Posting from an iPad which can be a pain)