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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: CBS gene mutations being investigated in Ehlers-Danlos.

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › CBS gene mutations being investigated in Ehlers-Danlos. › Reply To: CBS gene mutations being investigated in Ehlers-Danlos.

December 17, 2012 at 2:32 pm #3219
SweetFeather
Participant

Thanks for sharing Issie! Have you tried low carb grain free? My resting heart rates dropped an average of 20 points following a low carb grain free diet. That showed me that keeping insulin and leptin in control is critical for me to minimize my brain inflammation. That coupled with learning researchers want to rename alzheimer’s “type 3 diabetes” helps keep me motivated to keep carbs low. But with CBS too much protein can be a problem… because of sulfur!!! What to do???? What to do???? I love Maria Emmerich’s blog for her coconut flour and almond flour recipes. I’m looking for a provider who knows how to deal with CBS mutations because according to Dr. Yasko they must be addressed first. Please PM me if you have any suggestions. Thanks! My best, SweetFeather

PS. Issie did you check for celiac markers? Sterling Hill of MTHFR SUPPORT found I have several celiac markers… I’ve been gluten free for three years but if I’d known this earlier it could have made a huge difference in my health. I had NEGATIVE tests for celiac so those aren’t always accurate and even a biopsy can miss it… I had a postive response to diet and now I have genes to check for in my kids.

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