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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: FINALLY BEING TAKEN SERIOUSLY BY A CARDIOLOGIST!

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › FINALLY BEING TAKEN SERIOUSLY BY A CARDIOLOGIST! › Reply To: FINALLY BEING TAKEN SERIOUSLY BY A CARDIOLOGIST!

October 29, 2012 at 4:27 pm #3082
MJ
Participant

Thank you so much Dr. D. I have been suffering so long, and yes I need validation. You also think (from some pics) that I have CCSVI and vasculitis. So, a formal POTS & dysautonomia diagnosis is a great start, but I also need to pursue the CCSVI and vasculitis. Oh, and the cardiologist saw my ‘Crazy Veins’ video, and said my veins were like that b/c I am thin! LOL! However, I am not being too hard on her b/c she actually took the time to research POTS and find a specialist to send me to.

And yes, it is MUCH more than POTS. When I wake up in the middle of the night (other times too), my heart is POUNDING SO HARD all over my body, I BURNING UP SO BADLY, I have ‘CRAZY VEINS’, and the list goes on (oh yeah, and of course the tachycardia).

I am going to watch your video again (I did watch it when it was first posted) and I am going to print off something from dinet.org. I read it the other day. It lists all the tests for POTS AND dysautonomia; going to bring it to my appt. with the Electrophysiologist.

Thanks again, MJ 🙂

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