Thank you so much Dr. D. I have been suffering so long, and yes I need validation. You also think (from some pics) that I have CCSVI and vasculitis. So, a formal POTS & dysautonomia diagnosis is a great start, but I also need to pursue the CCSVI and vasculitis. Oh, and the cardiologist saw my ‘Crazy Veins’ video, and said my veins were like that b/c I am thin! LOL! However, I am not being too hard on her b/c she actually took the time to research POTS and find a specialist to send me to.
And yes, it is MUCH more than POTS. When I wake up in the middle of the night (other times too), my heart is POUNDING SO HARD all over my body, I BURNING UP SO BADLY, I have ‘CRAZY VEINS’, and the list goes on (oh yeah, and of course the tachycardia).
I am going to watch your video again (I did watch it when it was first posted) and I am going to print off something from dinet.org. I read it the other day. It lists all the tests for POTS AND dysautonomia; going to bring it to my appt. with the Electrophysiologist.
Thanks again, MJ 🙂