Thanks Barbara. I truly appreciate all the time you take here answering questions.
The PA finally picked up the phone and returned my call. So wish I could fire the PA but keep the Doctor. 😉 The Cardiologist has been trying to consult with a Neurologist in regards to the kiddos medical conditions and the results of the MRI. She couldn’t reach him before leaving town, but will be back midweek next week, so hopefully we can understand more and be scheduled for a visit.
The Geneticist narrowed down to HEDS or VEDS originally and figured she would watch for a while to see if becomes more obvious. We could do the VEDS test, but the cost along with the enormous medical bills we already have and continues to be added to we would put it off a but. I wonder what her thoughts would be on the results. Plan to have them sent over, but do wonder if she would feel more strongly about VEDS with these findings.