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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Divergence Insufficiency

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Vision › Divergence Insufficiency › Reply To: Divergence Insufficiency

September 11, 2013 at 3:31 am #4322
suckyeyes
Participant

Wondering if anyone else has been dx with this… I have had double vision on and off over the last 5 years or so especially after reading for prolonged periods or when tired. But since January everyday as my eyes fatigue my vision becomes double for distance vision. If I do any reading it will come on faster I guess as my eyes tire quicker. Usually by 1:00 or 2:00pm I can no longer drive. This is problematic as I am a single parent.

After many docs saying there was nothing to be done (I’m only 41)I have finally found an opthamologist that states he can cure this with in-office vision therapy + homework over the next 20 weeks. This is not covered by my benefits so will be very pricey hence my questions if anyone else has experienced this or had treatment work.

My history is complex. I have syringomyelia with a very long syrinx, tethered cord (detherered 4 years ago) POTS, Chiari zero, ?EDS (borderline on Beighton scale) and Cervicocranial instability. I have symptoms of increased ICP regularly. When researching this condition I was not surprised to see that blockage of flow of CSF thru the posterior cranial fossa is one of the possible mechanisms.

So my main question is if I go thru this therapy will this help me at all or will it just re-occur due to my ongoing pressure issues.

Any ideas appreciated! It is very traumatic to lose my vision at such a young age.

Oh my gosh, I’ve been trying to figure out the cause of my double vision, and I blame staring at screens at a close range. I made through MRI and blood tests, but the doctors (1 optometrist and 2 ophthalmologists) can’t figure out what’s wrong with me. I used to have exotropia, but now it’s esotropia. I also suspect some sort of divergence issues because I can see items at close range but not things far away. I guess that’s divergence insufficiency. I wear prism glasses while driving, but I feel like I need to retrain my eye muscles somehow.

I’m still trying to figure out what’s going on and am willing to go through intense vision therapy, though everyone says how useless VT is for my situation. I figured if my eyes got this bad, things can be improved.

Based on my doctors’ visits, it sure seems like I’m alone in this process, so I wanted to let you know that you’re not alone. The only difference is that my eyes get better as the day goes on, unlike yours. I am at a complete loss of what to do and am on a waiting list to begin vision therapy which won’t begin until next calendar year. I’m also in my 40s. Please let me know if you have a breakthrough. It’s been thoroughly frustrating at best.

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