I spoke with the PA today and she says the scans were mostly normal but one aspect needs to be explained to her by the doc because she is a cardiac PA, so doesn’t understand it. It was something to do with signalling in the brain but I won’t know more until tomorrow.
Over the years she has had a lot of tests. At this point I can’t remember what. Her endo has always been good with checking for any possibilities that could account for some or all of the things that goes on. It really took the POTS to jump in to begin to find answers, but I know we will likely continue to find more and more. My family has always been plagued with strange and bizarre things vs the traditional common things, so nothing surprises me anymore. A lot seems to be autoimmune in the family, but so few ever find answers. They just suffer. 🙁