NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Is it possible to have Inappropriate sinus tachycardia and pots? › Reply To: Is it possible to have Inappropriate sinus tachycardia and pots?
Hi Nompancakes, I’m so sorry for what you’re going through. Believe me, you are in good company on this forum! I would tell you that most of us (am I right?) have experienced exactly what you describe (and as you mentioned, I knew the underlying cause HAD to extend beyond the gradual laxity of vessels that is usually described, because my son and I were both triggered with viruses — not an unusual start). Are you on Zyrtec (antihistamines)? Did that give you some relief? Do you have any symptoms of hydrocephalus (headache at the base of your neck, dizziness, symptoms worse with valsalva (straining), the “feeling” of pressure in your head, etc? Diamox may be a big source of help for you. After you hit those two things, will you let us know how you’re doing? The pre-clinical trial testing for dysautonomia/POTS/EDS is about wrapped up and I I found what I thought I would find. Next is TREATMENT TRIALS!! Pulling it together right now. Did you already send in your symptom checklist (under “Articles and Handouts”?). That will guide us as to your next steps. Dominoes start to fall and depending on where you are in the process, we start treatment there. Cool? There IS HOPE for all of us. It took looking closely for the SOURCE of the problems to know how to treat it appropriately. Our treatment is not “symptomatic treatment”. Stay close by? Big hug, Diana